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                                              Join us at Be Free:                                                              ISSN 0951-9815                     These units provide neither
                                              mud, rain and shine!                                                             Volume 29, No. 4, Summer 2016      ‘assessment nor ‘treatment’ –
                                                                                                                               published by:
                                                                                                                               C.L. Initiatives Ltd               they should be renamed prisons
                                              Be Free is a magical experience of                                               No. 6 The Square                       eading the stories of young people kept in Assessment and Treatment
                                                                                                                               Waterhouse Green
           en Blackwell,                      discovery and adventure for people with                                          Whittle-le-Woods, Chorley          r Units featured in the ‘7 days of action’ campaign, one thing stands out.
                                                                                                                               Lancashire PR6 7LF
         Ja 33 year old woman with            learning disabilities, their families, friends                                   Tel. 0125  727 0430                Most were admitted without the family being aware of the nature of the institution
         Down’s syndrome, has won a                                                                                                                               their child was entering.
                                              and support workers. People can chill out
         prestigious award for her work as company director                                                                    Subscription enquiries:
                                              or try the adrenaline rush of adventure
         and trustee of her charity DanceSyndrome in the face                                                                  Rosemary Trustam                   Take Eden Norris for example. Eden has been in ATUs for the last seven years.
         of competition from business women across the             Jen is pictured third from left                             Tel. 0125  727 0430                He was admitted first aged 17 to an adult medium forensic unit. The family didn’t
                                                                   Jen is pictured third from left
                                              challenges – like the zip wire or 3G swing.
         North West region. Dancer Jen won the Enterprise          surrounded by her family and                                rosecli@btinternet.com             realise until after he had gone there what sort of unit it was. Eden had no criminal
                                                                   surrounded by her family and
         Vision Award of ‘Inspirational Woman’ which               colleagues from DanceSyndrome.                              C.L. Initiatives Ltd               history – yet he remained there for 5 years and 4 months until he was admitted to
                                                                   colleagues from DanceSyndrome.
                                                                                                                               (address as above)
             Michelle, a manager, sent seven people with learning disabilities and eight
         attracts sponsors for some 16 awards billed as                                                                                                           a second unit in January 2015 many miles away from home. Eighteen year old
         ‘The North-West’s Premier Ladies Awards’.                                                                             Editor                             Tianze who has autism, learning disabilities and sometimes behaviour problems,
             staff to the last Be Free festival. She reports: “It was amazing to hear
             what a profound experience they had in a really short time and how much                                           Elinor Harbridge                   was moved from his home in Fife, Scotland to a hospital in Middlesbrough, over
         There were five finalists in each category                        Jen’s poise and confidence in speaking              2 St Georges Close, Dunster,
             good they have taken away from it. Roll on Be Free!”
         out of all the entrants and Jen reached                           as she accepted the award is a tribute              Minehead TA24 6SS                  200 miles away, for what was supposed to be a six-week assessment. Two years
         the finals in two, her win being due to                           to what happens when people can                     elinorharbridge@btinternet.com     later he is still there. As in Tianze’s case, most of the young people featured in
         votes and the judges’ decision.                                   follow their dreams. (Take note tearful             01643 822513                       the campaign were sent to units many miles from home making it very difficult for
             When?          5pm on 13th September to 12pm on 15th September 2016
                                                                                                                               Mob.0789 9058 933
                                                                           tongue-tied Oscar winners!)
             Where?        Gilwell Park Scout Activity Centre, Chingford, London E4 7QW                                                                           families to maintain regular contact.
                           When Jen’s award was
                                  (25 mins by train from Liverpool Street in London)                                           Social media Editor                The other feature of these stories is that the behaviour of the young person always
                                                               To more applause she acknowledged the support she
                           announced her family,
                                                                                                                               Rosemary Trustam
             How much?  A 3 day pass is £185 +VAT. Wednesday pass is £50 +VAT                                                  @CommLivingmag                     deteriorates in these units, providing the managers with justification for keeping
                           colleagues and friends on table
                                                               had from ‘those on Table 14’ which included her
                           14 erupted into enthusiastic        support worker Naomi Bedford, Donna Harrison a                  Facebook: /www.facebook.com/       them there indefinitely.
                           applause accompanied by a           co-dance leader, Sarah Kennedy who helped in the                CommunityLivingMagazine
                                   Further details from:
                           standing ovation from the           early days including being chairman of the company,                                                Sam Sly, in her excellent article on page 6 of this issue, sets out in clear
                                   http://www.paradigm-uk.org/events-training/free-festival/
                           audience assembled in the           Dawn Vickers MD, co-dancer Peter Pamphlett and her              Arts correspondent                 unarguable terms why ATUs just don’t work. As she points out, when people are
                                   Email: loreb@paradigm-uk-org Tel. 020 870 8643
                           Winter Gardens Blackpool.           parents Malcolm and Sue Blackwell.                              Simon Jarrett                      in an institution they quickly become institutionalised, as do the staff. When staff
                                                                                                                               research                           work in institutions they find it hard to see any other way of supporting someone
                                                                                                                               Julie Ridley, Reader in Social Policy   especially as the person is reacting to the environment and is seen only through
                                                                                                                               & Practice, UCLan
                                                                                                                                                                  the prism of a medical model. The only beneficiaries are the privately run ATUs
                                                                                                                               photographer                       who make an enormous amount of money from retaining people as long as
         Belinda Schwehr, LLM                                                                                                  Seán Kelly                         possible. It’s high time they were acknowledged for what they are – prisons
                                                                                                                                                                  where inmates have lost all their human rights.
                                                                                                                               www.seankellyphotos.com
                                                                                                                                                                                                                                                       Elinor Harbridge
           Trainer & Consultant in Care                                                                                        consultant Editors
                                                                                                                               Gill Levy, Sally Warren, MD, Paradigm
              and Health Law                                                                                                   legal correspondent                What can we learn from Josiah Wedgwood?
            Bespoke and Regional Courses                                                                                       Belinda Schwehr, LLM                  osiah Wedgwood was the only MP to argue against the Mental Deficiency Act
                                                                                                                               Legal Framework Trainer & Consultant
                                                                                                                               Care and Health Law                 J of 1913 which set up a system of unprecedented social and medical control
            Webinars                                                                                                           belinda@careandhealthlaw.com       for those deemed to be ‘mentally deficient’ (see The lone libertarian –
            Legal Framework Consultancy                                                                                        publisher                          Josiah Wedgwood and the Mental Deficiency Act 1913, page19). Wedgwood
                                                                                                                                                                  had no apparent experience of, or even interest in, deficiency himself. For him
                                                                                                                               Rosemary Trustam
                                                                                                                               rosemarytrustam@btinternet.com     this was a matter of individual liberty. In our modern terminology he was not a
                                                                                                                                                                  disability activist, or advocate, but a human rights campaigner. For him every
            Subjects covered: Personalisation; Reviews and Cuts;                                                               Editorial board                    person was a citizen, and as such was entitled to the protections and liberties that
            Mental Capacity and DoLS; Safeguarding and Regulation;                                                             Jo Clare, CEO, Three Cs            all citizens enjoyed. Such liberty was not something that could just be handed
                                                                                                                               Noelle Blackman, CEO, Respond
            Contracting and Commissioning for Personalisation;                                                                 Tony Bamforth CEO, The Elfrida Society   over to unaccountable members of the medical profession who would control the
            Direct Payments and Money Management for People                                                                    David Naden, CEO, Linkability      lives and actions of the deficient until the day they died.
                                                                                                                               Sue Pemberton, CEO, Integrate Ltd
            with Impairments; Continuing NHS Health Funding and                                                                Jane Lloyd & Debbie Forde, Senior Lecturers  We live today in a much more professionalised world and we unconsciously
            Mental Health Consultancy and advice.                                                                              School of Social Work, UCLan       accept professional and state authority far more readily than Wedgwood was
                                                                                                                               Beth Tarleton, Senior Research Fellow
                                                                                                                               Norah Fry Centre for Disability Studies  prepared to do in 1913. The Winterbourne View abuse, and other cases,
         Contact Belinda on: 07974 399361 Email: belinda@careandhealthlaw.com                                                  Sally Warren, MD, Paradigm         have been seen more as the failure of professional care systems, or the provision
                                                                                                                               Rosemary Trustam, Gill Levy,
                                                                                                                                                                  of the wrong type of care, than as the horrendous human rights abuses that they
                           Training reservations:Debbie Tel: 01252 494098                                                      Elinor Harbridge                   were. By being in a care system, the Winterbourne View residents were already
                                  Email: debbie@careandhealthlaw.com                                                           Designed and printed by Character  seen as denizens of a different moral universe to the rest of us. For Wedgwood it
                                                                                                                                                                  would have been simpler  – these were citizens, brutalised at the state’s expense,
                                                                                                                               Graphics, Taunton, tel. 01823 279008
                                                                                                                                                                  because the state deemed them people who existed outside the usual system of
                            www.careandhealthlaw.com                                                                           © C.L. Initiatives Ltd 2016        legal protection and personal liberty that citizenship should confer.
                                                                                                                               Registered Charity No. 1141176
                               Go to Hot News to select topics for free email updates!                                                                                                                                     Simon Jarrett
                                                                                                                             www.cl-initiatives.co.uk
                                                                                                                             www.cl-initiatives.co.uk                                                 Community  Living        Vo l  29  No  4  | Summer  2016      1
                                                                                                                                                                                                      Community Living      Vol 29 No 4 | Summer 2016     1
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