Page 8 - Community Living Magazine 34-3
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3,000 lIVES                                                                                                                                                                                                                 3,000 lIVES

                               WHy ATUS                                         and a normal life because they don’t          speedy job of ‘treating’ a person and   A good plan                      & Support Alliance have developed
                                                                                                                                                                  The importance of good planning can’t
                                                                                do normal things in ATUs. In a risk-
                                                                                                                              getting them home.
                                                                                                                                                                                                       guidance and a training pack ‘Life
                               DoN’T WorK                                       averse culture, a large group of people         Shutting families out             be emphasised enough in getting a    Begins at Home’ that will help
                                                                                                                                                                                                       professionals think through
                                                                                                                                                                  good life for someone when they
                                                                                cannot be risk-assessed. The kitchens,
                                                                                bathrooms and cleaning cupboards are          But what is most damaging is that when  leave an ATU. This planning needs to   housing issues and solutions:
                                                                                often locked so an understanding of a         people go into an ATU they are ripped   happen as soon as they are admitted   https://www.housingandsupport.
                               By their very nature ATUs are not set            person’s abilities to look after              away from family, loved ones, friends   and should be based on the person’s   org.uk/life-begins-at-home
                               up to work with people in their familiar         themselves has to be based on                 and their familiar places. This in itself   hopes, dreams, skills and talents.
                               environment and rehabilitate them;               historical information.                       is devastating but is often compounded   It should involve exploring what a life   A budget
                               instead, they seek to remove and treat with      The ‘problem’ isn’t resolved by               by the professionals then subtly or   that makes sense to them looks like.   Money is seen as a big problem,
                                                                                                                              sometimes blatantly closing ranks and
                                                                                                                                                                                                       especially in this climate of austerity,
                                                                                                                                                                  Planning has to involve the person and
                               an extremely small toolkit, says Sam Sly         removing a person to an ATU.                  shutting families out of learning and   those people who know them well.   but until we stop wasting public
                                                                                The problem will still be there when          decision-making. Families start     If you don’t have a good plan you    money on ATUs and poorly thought
                                                                                the person goes back. In nine times           to be seen as a problem if they     won’t get a good life – simple as!   through discharge solutions we
           ver a year ago I was            Why don’t ATUs work?                 out of ten it would have been better to       challenge things, are often written                                      can’t use austerity as an excuse.
       oasked to write about               An ATU is an institution based on a   have targeted resources to prevent the       out of the person’s future and their   Partnerships                      The flexibility and adaptability of a
       getting people out of               medical model of ‘assessment’ and    problem escalating.                           importance disregarded.             To make discharge work well those    package of support needed to meet
       Assessment & Treatment Units        ‘treatment’ which in itself has a                                                                                      involved have to work together on    the often fast changing needs of a
       (ATUs) but didn’t get around to     multitude of problems. Many people   I have huge issues with the reasons           What is needed to get               an equal footing when it comes to    person just discharged from an
       it so when I was asked again I      admitted to ATUs have autism or other   people are admitted to ATUs in the         people home                         decision-making. And those people    ATU can only, in my opinion,
       thought I would reflect first on    learning disabilities and it is argued   first place. When I have done life        We, the professionals, have made    involved are the commissioners,      be met through the use of an
       the changes I have seen in a        that these conditions cannot be      planning with people and heard their          getting a person home difficult.    the local community team but also,   individual social care/health budget
       year. Then I will look again        ‘treated’ in a traditional way.      stories it is rarely because someone          We have over complicated things     crucially, the person, the family and   (IB or IHB) or the support provider
       at why I think people aren’t                                             has suddenly become unsettled and             and developed the barriers so we    the support provider. And equal      holding an individual service fund
       home and what needs to              By their very nature ATUs are not set   unmanageable but usually because           are totally responsible for the mess   footing means exactly that.       (ISF) on behalf of the person.
       be done.                            up to work with people in their familiar   the family have asked for help for      and broken, wasted lives we have    Power, if not shared with families,
                                           environment and rehabilitate them;   years and been ignored or given the           created. We also bandy about        is incredibly destructive when it    This then puts the power and control
       To be blunt, as far as professionals    instead, they seek to remove and treat   wrong help.                           words like ‘person-centred’,        comes to someone getting home.       for decision-making and design back
       getting people back home to their    with an extremely small toolkit, namely                                           ‘co-production’, ‘individual budgets’,   Partnership                                    where it belongs
       families and communities are        drug therapy including ‘injected as   The prism of a medical model                 ‘supported living’ and don’t do any of   working                                        with the person
       concerned, I cannot see that a huge   required’ medication and behavioural   When people are in an institution         it properly, tarnishing what started out   should start                                 and their family.
       amount has changed. There are a lot   therapy including restraint and    they quickly become institutionalised,        and could still be the cornerstones of   with the       ATUs have absolutely            Sadly, I have seen
       more checks and balances with the   seclusion. This means that sensory   as do the staff. When staff work in           great lives.                        planning,               no incentive to             IBs and IHBs used to
       Care & Treatment Reviews and        and communication needs are often    institutions they find it hard to see                                             and can be            discharge people;             make a challenging
       NHS England is asking for more      overlooked or not assessed at all and   any other way of supporting a person       Getting a person home isn’t hard in   helped by            the private ones             family ‘go away’
       updates on progress. There has been    the person is lost completely. Some of   especially as the person is reacting to   theory but does involve a lot of work   the use of   make huge profits from          and ISFs are little
       a raft of policies and procedures    the methods used, such as ‘intravenous   the environment and the person is        and thinking outside of ‘serviceland’   individual    keeping people in for as          known about by
       and more money has been thrown      as required’ medication and prone    seen only through the prism of a              which some professionals find difficult.  budgets.         long as possible.            either professionals
       at the problem but in reality the    restraint, cannot be used in a normal   medical model. When discharge is                                              It is hard for                                      or providers
       people returning to a home that     house in a normal street making it   being planned the ATU staff are relied        Thinking ‘serviceland’              professionals                                       and families.
       suits them, with support that is    difficult to discharge people.       on heavily for their views on where the       The professionals who make decisions   to relinquish
       right for them, isn’t happening often,                                   person should live and often they             about where someone should go after   power – they can dress it up in all   Good help
       or quickly enough.                  The environment does not lend itself   have no other experience than               being in an institution like an ATU work  sorts of guises: duty of care, statutory   Good help needs to come not just
                                           to helping the people it contains.   their institution so recommendations          in and think ‘serviceland’. If we don’t   responsibility etc., but to make good   from a support provider or personal
       People who shouldn’t be in ATUs are   Many have experienced difficulties   are based on similar models.                think differently solutions will always   decisions about sometimes risky   assistants but also from the
       still there and the biggest scandal is   living or sharing space with others and   The people themselves also become   be targeted at what is already there;   dangerous behaviour everyone has   local community learning
       that these are not just adults but many   now find themselves with many other   institutionalised and for some         which care home? what respite centre?   to be in agreement about the way   disability/mental health team.
       children too. Spending your formative   people every day, many of whom show  leaving after many years can be a         which block provider contracts are   forward and people and families have   These professionals need to be
       years in an ATU is a certain precursor   they are unhappy by hurting themselves  scary prospect.                       already in place?                   to feel they really are in control of   working as partners together and
       to a lifetime of problems.          and others. These people need space                                                                                    their lives.                         the community support often
                                           indoors and out to meet sensory needs;  When a person lives side by side with      We pretty much know, through things                                      needed is 24 hour hands-on
       Family activism                     instead, by default of a mental health   others with behaviours that challenge     going wrong and re-admission to     A home                               help and advice, especially in the
       The positive changes I have seen,    act section, they are locked up. Lots of   they will learn new negative ways to   ATUs, that the people who challenge   A person has to have somewhere to   first 12-18 months after someone
       however, are with families of people    these people have sensory needs and   communicate and show their boredom,      us don’t fit into ‘serviceland’ – it is   live that works for them. This requires   comes home as this is how long
       in ATUs and interested members      react badly to noise and crowds and   frustration and feelings. People go into     like fitting a square peg into a    detailed planning around the person’s   it takes to unlearn the bad things
       of the public galvanising themselves   yet are put in environments that have   an ATU with one behaviour and come      round hole.                         needs. Slotting someone into a       experienced in an ATU.
       into action and protest, mainly through   alarms going off day and night and   out with a handful that then takes years                                    residential setting because there is a
       social media, an amazing way to     people shouting and screaming.       to change.                                    By planning well and involving the   vacancy won’t work, nor will setting up   Good help can also be provided by
       highlight the problems and get results.   It’s hardly surprising that their                                            right people solutions tailored to   ‘supported living’ with people sharing   people that are especially picked,
       It has been inspiring to watch the rise   behaviour deteriorates.        ATUs have absolutely no incentive to          individuals can be found or developed   whose only connection is having   by the person, to work with them.
       of family activism and I believe that                                    discharge people; the private ones            and pretty much every time these won’t   challenging behaviour. There are so   Matching workers to a person’s
       this, and not professional intervention,   It is nigh on impossible to assess and   make huge profits from keeping     cost anywhere near as much as the   many options available within housing   attributes, hobbies and interests often
       may in the end be the turning point that  give a person the skills they will need   people in for as long as possible and   expensive ATU placements they have   but still many people end up living in   enables great, positive relationships to
       ends the use of ATUs.               for discharge back to a normal house   there is no pressure on them to do a        come from.                          traditional group settings. The Housing               (Continued overleaf)

      6      Vol 29 No 4 | Summer 2016     Community Living                                     www.cl-initiatives.co.uk     www.cl-initiatives.co.uk                                                 Community Living      Vol 29 No 4 | Summer 2016     7
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