Page 9 - Community Living Magazine 34-3
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3,000 lIVES                                                                                               3,000 lIVES

 WHy ATUS  and a normal life because they don’t   speedy job of ‘treating’ a person and   A good plan   & Support Alliance have developed
                                           The importance of good planning can’t
 do normal things in ATUs. In a risk-
       getting them home.
                                                                                guidance and a training pack ‘Life
 DoN’T WorK  averse culture, a large group of people     Shutting families out  be emphasised enough in getting a   Begins at Home’ that will help
                                                                                professionals think through
                                           good life for someone when they
 cannot be risk-assessed. The kitchens,
 bathrooms and cleaning cupboards are   But what is most damaging is that when  leave an ATU. This planning needs to   housing issues and solutions:
 often locked so an understanding of a   people go into an ATU they are ripped   happen as soon as they are admitted   https://www.housingandsupport.
 By their very nature ATUs are not set    person’s abilities to look after    away from family, loved ones, friends   and should be based on the person’s   org.uk/life-begins-at-home
 up to work with people in their familiar  themselves has to be based on    and their familiar places. This in itself   hopes, dreams, skills and talents.
 environment and rehabilitate them;  historical information.   is devastating but is often compounded   It should involve exploring what a life   A budget
 instead, they seek to remove and treat with   The ‘problem’ isn’t resolved by    by the professionals then subtly or   that makes sense to them looks like.   Money is seen as a big problem,
       sometimes blatantly closing ranks and
                                                                                especially in this climate of austerity,
                                           Planning has to involve the person and
 an extremely small toolkit, says Sam Sly  removing a person to an ATU.    shutting families out of learning and   those people who know them well.   but until we stop wasting public
 The problem will still be there when    decision-making. Families start   If you don’t have a good plan you   money on ATUs and poorly thought
 the person goes back. In nine times   to be seen as a problem if they   won’t get a good life – simple as!  through discharge solutions we
 ver a year ago I was    Why don’t ATUs work?   out of ten it would have been better to   challenge things, are often written   can’t use austerity as an excuse.
 oasked to write about    An ATU is an institution based on a   have targeted resources to prevent the   out of the person’s future and their   Partnerships   The flexibility and adaptability of a
 getting people out of    medical model of ‘assessment’ and   problem escalating.   importance disregarded.  To make discharge work well those   package of support needed to meet
 Assessment & Treatment Units   ‘treatment’ which in itself has a   involved have to work together on   the often fast changing needs of a
 (ATUs) but didn’t get around to   multitude of problems. Many people   I have huge issues with the reasons   What is needed to get   an equal footing when it comes to   person just discharged from an
 it so when I was asked again I   admitted to ATUs have autism or other   people are admitted to ATUs in the   people home   decision-making. And those people   ATU can only, in my opinion,
 thought I would reflect first on   learning disabilities and it is argued   first place. When I have done life   We, the professionals, have made   involved are the commissioners,   be met through the use of an
 the changes I have seen in a   that these conditions cannot be   planning with people and heard their   getting a person home difficult.   the local community team but also,   individual social care/health budget
 year. Then I will look again    ‘treated’ in a traditional way.  stories it is rarely because someone   We have over complicated things   crucially, the person, the family and   (IB or IHB) or the support provider
 at why I think people aren’t   has suddenly become unsettled and   and developed the barriers so we   the support provider. And equal   holding an individual service fund
 home and what needs to    By their very nature ATUs are not set   unmanageable but usually because   are totally responsible for the mess   footing means exactly that.   (ISF) on behalf of the person.
 be done.  up to work with people in their familiar   the family have asked for help for   and broken, wasted lives we have   Power, if not shared with families,
 environment and rehabilitate them;   years and been ignored or given the   created. We also bandy about   is incredibly destructive when it   This then puts the power and control
 To be blunt, as far as professionals    instead, they seek to remove and treat   wrong help.  words like ‘person-centred’,   comes to someone getting home.   for decision-making and design back
 getting people back home to their    with an extremely small toolkit, namely      ‘co-production’, ‘individual budgets’,   Partnership   where it belongs
 families and communities are   drug therapy including ‘injected as   The prism of a medical model  ‘supported living’ and don’t do any of   working   with the person
 concerned, I cannot see that a huge   required’ medication and behavioural   When people are in an institution   it properly, tarnishing what started out   should start   and their family.
 amount has changed. There are a lot   therapy including restraint and   they quickly become institutionalised,   and could still be the cornerstones of   with the   ATUs have absolutely   Sadly, I have seen
 more checks and balances with the   seclusion. This means that sensory   as do the staff. When staff work in    great lives.  planning,   no incentive to  IBs and IHBs used to
 Care & Treatment Reviews and    and communication needs are often   institutions they find it hard to see    and can be   discharge people;   make a challenging
 NHS England is asking for more    overlooked or not assessed at all and   any other way of supporting a person   Getting a person home isn’t hard in   helped by   the private ones  family ‘go away’
 updates on progress. There has been    the person is lost completely. Some of   especially as the person is reacting to   theory but does involve a lot of work   the use of   make huge profits from  and ISFs are little
 a raft of policies and procedures    the methods used, such as ‘intravenous   the environment and the person is    and thinking outside of ‘serviceland’   individual   keeping people in for as  known about by
 and more money has been thrown    as required’ medication and prone   seen only through the prism of a   which some professionals find difficult.  budgets.   long as possible.  either professionals
 at the problem but in reality the    restraint, cannot be used in a normal   medical model. When discharge is   It is hard for   or providers
 people returning to a home that    house in a normal street making it   being planned the ATU staff are relied   Thinking ‘serviceland’  professionals   and families.
 suits them, with support that is    difficult to discharge people.  on heavily for their views on where the   The professionals who make decisions   to relinquish
 right for them, isn’t happening often,    person should live and often they   about where someone should go after   power – they can dress it up in all   Good help
 or quickly enough.  The environment does not lend itself   have no other experience than   being in an institution like an ATU work  sorts of guises: duty of care, statutory   Good help needs to come not just
 to helping the people it contains.   their institution so recommendations   in and think ‘serviceland’. If we don’t   responsibility etc., but to make good   from a support provider or personal
 People who shouldn’t be in ATUs are   Many have experienced difficulties   are based on similar models.   think differently solutions will always   decisions about sometimes risky   assistants but also from the
 still there and the biggest scandal is   living or sharing space with others and   The people themselves also become   be targeted at what is already there;   dangerous behaviour everyone has   local community learning
 that these are not just adults but many   now find themselves with many other   institutionalised and for some   which care home? what respite centre?   to be in agreement about the way   disability/mental health team.
 children too. Spending your formative   people every day, many of whom show  leaving after many years can be a   which block provider contracts are   forward and people and families have   These professionals need to be
 years in an ATU is a certain precursor   they are unhappy by hurting themselves  scary prospect.  already in place?  to feel they really are in control of   working as partners together and
 to a lifetime of problems.   and others. These people need space   their lives.  the community support often
 indoors and out to meet sensory needs;  When a person lives side by side with   We pretty much know, through things      needed is 24 hour hands-on
 Family activism  instead, by default of a mental health   others with behaviours that challenge   going wrong and re-admission to   A home   help and advice, especially in the
 The positive changes I have seen,    act section, they are locked up. Lots of   they will learn new negative ways to   ATUs, that the people who challenge   A person has to have somewhere to   first 12-18 months after someone
 however, are with families of people    these people have sensory needs and   communicate and show their boredom,   us don’t fit into ‘serviceland’ – it is   live that works for them. This requires   comes home as this is how long
 in ATUs and interested members    react badly to noise and crowds and   frustration and feelings. People go into   like fitting a square peg into a   detailed planning around the person’s   it takes to unlearn the bad things
 of the public galvanising themselves   yet are put in environments that have   an ATU with one behaviour and come   round hole.   needs. Slotting someone into a   experienced in an ATU.
 into action and protest, mainly through   alarms going off day and night and   out with a handful that then takes years   residential setting because there is a
 social media, an amazing way to   people shouting and screaming.   to change.   By planning well and involving the   vacancy won’t work, nor will setting up   Good help can also be provided by
 highlight the problems and get results.   It’s hardly surprising that their   right people solutions tailored to   ‘supported living’ with people sharing   people that are especially picked,
 It has been inspiring to watch the rise   behaviour deteriorates.   ATUs have absolutely no incentive to   individuals can be found or developed   whose only connection is having   by the person, to work with them.
 of family activism and I believe that   discharge people; the private ones   and pretty much every time these won’t   challenging behaviour. There are so   Matching workers to a person’s
 this, and not professional intervention,   It is nigh on impossible to assess and   make huge profits from keeping   cost anywhere near as much as the   many options available within housing   attributes, hobbies and interests often
 may in the end be the turning point that  give a person the skills they will need   people in for as long as possible and   expensive ATU placements they have   but still many people end up living in   enables great, positive relationships to
 ends the use of ATUs.  for discharge back to a normal house   there is no pressure on them to do a   come from.  traditional group settings. The Housing   (Continued overleaf)

 6      Vol 29 No 4 | Summer 2016     Community Living  www.cl-initiatives.co.uk  www.cl-initiatives.co.uk  Community Living      Vol 29 No 4 | Summer 2016     7
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